Wednesday, May 1, 2013

Waiting to Exhale ~ Praying for Tricia

To learn more about organ donation check out .
To learn more about Cystic Fibrosis click on .

Today my friend Tricia is in a situation . If she doesn't improve in some way or receive new lungs today , she will be put on a vent . Which is not the best or desired scenario . Last night Nate , Tricia's husband hosted a chat session to help answer questions about Tricia's condition , how people can help , debunk donation myths and more . So many people are invested in Tricia , Nate and Gweneth (their miracle baby daughter) that with every new development it seems the earths population gasps . Gasp in fear . Gasp in hope . With every gasp I make I'm reminded how easily I breathe even on a "allergy" day . With every sigh of frustration I notice how easily my rib cage moves up and down . I've noticed I even take my frustrations for granted .  At the moment , it seems with every inhale and every exhale I think of how hard it must be for Tricia to do the same .

Nate aka Clarise - The Joker in the Background :-)

I've written here , here, and here about my friends , their daughter and their continued faith in Gods plans for their lives as individuals and as a family . Last night as I observed the online chat about Tricia I was once again impressed and challenged by these lives . The reality of the situation makes me want to panic , run in circles and cry . I read phrases such as "end of life phase" , "ventilation" ,  "CF patients will die of either...." , and varied others that just make my heart ache . They make all of me hurt on behalf of my friends and their family . I know that I feel helpless I can't imagine how those closer to the situation feel . But once again I say that the words that Nate and Tricia share with the rest of the world are so challenging . I haven't heard frustration , though I'm sure they've felt it . I haven't heard anger though I can't imagine not at some point getting ticked . I can't tell you how many nights I've prayed that the Lord would find Tricia good lungs , that He would heal her so she can spend time with her husband and daughter out side of tubes and machines and oxygen tanks . It may be apart of His plan . It may be awhile before we know .

Tricia & I after getting rained out
of our Putt Putt game in the OBX .
Why write about this again ? To ask for prayer . To help make aware details of organ donation . To celebrate Cystic Fibrosis Awareness month . To feel like I've done something helpful . That last one might be selfish , but in a time when very little can be done by those miles away I think little things can be big helps . Just getting out the info that goes along with organ donation to people who other wise may not have thought about it feels like an accomplishment to me . Also, May is Cystic Fibrosis Month , here is a link that you can click on to find out how you can help celebrate , help and spread the word .
Quick Facts about CF and Organ Donation

  • About 1,000 new cases of cystic fibrosis are diagnosed each year.
  • More than 70% of patients are diagnosed by age two.
  • More than 45% of the CF patient population is age 18 or older.
  • The predicted median age of survival for a person with CF is in the late 30s
  • 30,000 children and adults have CF in the United States
  • More than 10 million Americans are symptomless carriers of the defective CF gene.
  • About 1,000 new cases of cystic fibrosis are diagnosed each year.

    Organ Donation:
    • Currently, nearly 120,000 men, women and children are awaiting organ transplants in the United States. For specific numbers visit
    • 65,991 Multicultural Patients*
    • 1,760 Pediatric Patients*
    • 28,052 Organ Transplants Performed in 2011
    • 14,013 Organ Donors in 2012
    • More than 46,000 corneas were transplanted in 2012
    • More than 1 million tissue transplants are done each year and the surgical need for tissue has been steadily rising
    *as of March 2013

    To learn more about organ donation check out .
    To learn more about Cystic Fibrosis click on .

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